ISOQOL Outstanding Article of the Year Award!
We are very pleased to share the news that a paper Mary co-authored has been selected by ISOQOL for the “ISOQOL Outstanding Article of the Year Award”. “A comparison of three methods to generate a conceptual understanding of a disease based on the patients’ perspective” was published in the Journal of Patient-Reported Outcomes in Dec 2017 (link)1. This paper explores the use of alternative, pragmatic methods to supplement traditional approaches in patient-reported outcome (PRO) instrument development. Mary has worked collaboratively with lead author, Louise Humphrey (Clinical Outcome Solutions), on other projects as well.
The award will be presented at the ISOQOL Annual Conference in Dublin, Ireland October 2018.
Additionally, Mary will co-present a workshop at the ISOQOL Conference with Emil Chiauzzi (Patients Like Me), on “Group Concept Mapping: Engaging Patients as Outcome Framework Co-Authors”. This workshop will provide attendees with new insights, tools and capacities for PRO and QOL definition.
Mary will also present a poster at the ISOQOL Conference on “Valuing Voice: Seeking and Engaging Stakeholders in Context Using Group Concept Mapping in Planning and Evaluation”. This poster will explore how actively seeking and engaging individuals in articulating their own perspectives, needs, concerns and knowledge catalyzes stronger, more resilient, more sustainable changes in social environments, and creates a ready platform for participant-authored evaluation.
1Humphrey L, Willgoss T, Trigg A, Meysner S, Kane M, Dickinson S, Kitchen H: A comparison of three methods to generate a conceptual understanding of a disease based on the patients’ perspective. J Patient Rep Outcomes 2017, 1:9.